Report Launched:
Brain health - time matters
Multiple sclerosis (MS), neuromyelitis optica spectrum disorder (NMOSD), myelin oligodendrocyte glycoprotein antibody-associated disease (MOGAD) and related conditions
We are delighted to announce that our new ‘Brain health – time matters’ report has been successfully launched and is available to access! This covers the latest advancements and needs in MS, NMOSD and MOGAD and highlights the policy changes needed to help people with these diseases live their best possible lives.
Since our first publication in 2015, care and treatment in neuroimmune conditions have hugely advanced. This new report delves into these advancements and addresses the ongoing needs of those living with these lifelong conditions. MS, NMOSD, and MOGAD are chronic, incurable diseases that can severely impact many aspects of life, especially when undiagnosed, misdiagnosed, or not treated early and effectively. Owing to this, expanding the scope of the report to include rare neuroimmune conditions may enable wide-reaching impact and improvements.
With the ‘Brain Health – Time Matters’ report, we aim to advance global care and support for individuals with MS, NMOSD, and MOGAD and their families. It has been developed in collaboration with a panel of co-authors, experts across disciplines; Helmut Butzkueven, Gavin Giovannoni, Sofia Arkelsten, Giancarlo Comi, Kathleen Costello, Michael Devlin, Jelena Drulovic, Emma Gray, Jodi Haartsen, Anne Helme, Jana Hlaváčová, Elisabeth Kasilingham, Yaou Liu, Thomas Mathew, Saúl Reyes, Jérôme de Sèze and Mitzi J Williams; and over 45 experts, contributing within subject matter working groups, with support from F. Hoffman-La Roche Ltd, Multiple Sclerosis Society and Horizon, now part of Amgen.
We encourage you to explore our findings and recommendations. Let’s move beyond ‘if only’ and seize opportunities for meaningful change!
Brain health – time matters report
Video gallery
Report infographic
Executive Summary
The launch event was held on 19 September in Copenhagen and online, featuring insightful discussions from world-leading experts including Sumaira Ahmed, Helmut Butzkueven, Gavin Giovannoni, Anne Helme, Elisabeth Kasilingam, and Mitzi J Williams. Follow us on social media to see videos from the launch event.
Spread the word:
We welcome online engagement. Please use the following hashtags when posting about the report:
#BrainHealthTM #BrainHealth #MSBH #OHPF #MSTimeMatters #NMOSDTimeMatters #MOGADTimeMatters
The report has been supported by a grant from F. Hoffman-La Roche Ltd, which has had no control over the educational content of this activity. Grant funding has also been provided by the Multiple Sclerosis Society, which has contributed to the report as an author. Horizon, now part of Amgen, provided sponsorship for the development of this report and has had no control over the educational content.
The launch of this report has been sponsored by Merck Healthcare KGaA and Alexion Pharma GmbH; they have had no influence on the content of the launch event nor the report.
