New website articles available online
Sharing clinical trial results with people with MS
Researchers have investigated the best methods of communicating information on disease-modifying therapies to people with MS. Their findings are being disseminated to healthcare professionals so that they can help people with MS understand the benefits and risks of therapies and support them to make complicated treatment-related decisions.
First European MS treatment guideline
The new guideline, which was developed by the European Committee of Treatment and Research in MS (ECTRIMS) and the European Academy of Neurology (EAN), has 21 recommendations on therapeutic interventions and the clinical management of people with MS. In this, the first article in a two-part series, we look at what the guideline says about treatment and monitoring.
Next month, we will examine the recommendations that relate to switching treatments.
Neurologists' guidance on early discussions about treatment
Informed, shared decision-making is a central component of modern MS care. As part of the global MS consensus standards presented at ECTRIMS 2017, neurologists agreed that the MS team should discuss the aims of treatment with people with MS within 2 weeks of diagnosis. There was consensus that this standard should be achievable for most MS clinics globally.
Early intervention can lead to better outcomes (figure). Discussing treatment aims promptly after diagnosis enables people with MS to participate in informed, shared decisions about their treatment.
Each month we will continue to take a closer look at one global standard that has emerged from the consensus research.
New! French translations of short guides for healthcare professionals
We are delighted that two of our key resources for healthcare professionals are now available in French.
Primary care provider guide: this highlights the symptoms of MS and the need to diagnose MS early to maximize brain health. A letter recommending the guide to primary care providers has also been translated into French; it can be personalized for use by MS specialists.
Brain health nursing resource: this summarizes how nurses can best help people with MS to maximize their lifelong brain health.
These new translations add to the MS Brain Health materials that are already available in French:
- La Santé du cerveau: le temps compte en sclérose en plaques – executive summary and recommendations from the full report
- Garder un cerveau en bonne santé: guide d’information pour les personnes atteintes de sclérose en plaques – guide for people with MS
- La santé du cerveau: le temps compte dans la sclérose en plaques – slide deck for healthcare professionals
Dr Christine Lebrun-Frénay will present a poster at the Journées de Neurologie de Langue Française 2018 annual meeting (Bordeaux, France, 10–13 April) to raise awareness of the MS Brain Health recommendations and French resources.
You can follow us on Twitter @MSBrainHealth to keep up with the latest news. Thank you for your continuing support!
Gavin Giovannoni, MD
Professor of Neurology and Chair of the MS Brain Health Steering Committee
On behalf of the MS Brain Health Steering Committee: Gavin Giovannoni, Peer Baneke, Helmut Butzkueven, Jodi Haartsen, Jeremy Hobart, Gisela Kobelt, Christoph Thalheim, Tony Traboulsee, Tim Vollmer and Tjalf Ziemssen