MS Brain Health June 2018 Newsletter

Over the past month, we have presented MS Brain Health research at major conferences in Europe, the USA and Australia and learned more about the experiences of people living with MS in the USA. It has been great to meet some of you in person at these events, and we are pleased to welcome many new supporters!


Consensus standards presented at EAN 2018 

International consensus standards for the timing of key stages in MS care were presented in our focused workshop, Brain Health in MS: a catalyst for a new approach to management, at EAN 2018 in Lisbon this month. Over 150 attendees joined this interactive workshop and gave their responses to the new quality standards.

Professor Gavin Giovannoni, Dr Gisela Kobelt and Professor Jeremy Hobart gave presentations and participated in a lively Q&A session. “The standards should not be used as a means to criticize MS teams, but instead provide an opportunity for every MS clinic to strive for the highest level of care,” stressed Professor Hobart. 

Read more 


Latest MS Brain Health presentations available to download

EAN 2018 ePresentation – International consensus on quality standards for multiple sclerosis care: results from a modified Delphi process

Prof Jeremy Hobart shared the MS Brain Health vision for quality standards: a benchmark that will help individual MS services globally strive for the highest level of care

CMSC 2018 poster – Implementing a brain health-focused approach to multiple sclerosis care: global and local MS Brain Health initiatives

Jodi Haartsen, MS nurse practitioner, showcased the Australian MS Brain Health Community as a driver for local change

ANZAN 2018 poster – Expert consensus on standards for multiple sclerosis care: results from a modified Delphi process

Prof Helmut Butzkueven presented our quality standards for timely MS care in Australia for the first time


Professional organizations in Australasia endorse the policy report 

MS Nurses Australasia and the MS Neurology subspecialty group of the Australian and New Zealand Association of Neurologists have become the latest professional groups to officially endorse the policy report, Brain health: time matters in multiple sclerosis. We’re delighted that these groups have joined our other 46 endorsers.


Revisions to criteria used in the diagnosis of MS

Motivated by recent technological advances and new data on the diagnosis of MS, experts have refined the 2010 McDonald criteria – the widely used diagnostic criteria for MS. The experts hope that the updated criteria will facilitate early and accurate diagnosis of MS.

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New! Dutch translations of short guides

We are delighted to announce that our guide for people with MS and nursing resource are now available in Dutch. Follow the links above, click ‘Download’ and select your language.

Please do share these resources with your Dutch-speaking colleagues and friends.


You can follow us on Twitter @MSBrainHealth to keep up with the latest news. Thank you for your continuing support!

 

Gavin Giovannoni, MD
Professor of Neurology and Chair of the MS Brain Health Steering Committee

On behalf of the MS Brain Health Steering Committee: Gavin Giovannoni, Peer Baneke, Helmut Butzkueven, Jodi Haarsten, Jeremy Hobart, Gisela Kobelt, Christoph Thalheim, Tony Traboulsee, Tim Vollmer and Tjalf Ziemssen 


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