MS Brain Health ECTRIMS 2018 Newsletter

We are excited to be in Berlin this week at ECTRIMS 2018, the world’s largest annual congress devoted to research in MS. Read more to find out how we will be spreading the time matters message at the event, and for other key updates. We’ve also just heard that our research to develop new, international quality standards in MS care has been accepted for publication in Multiple Sclerosis Journal; we will send out a special bulletin when it becomes available!


MS Brain Health clinical management tool – view our ePoster

MS healthcare professionals have collaborated with a clinical trials specialist to develop a prototype clinical management tool that allows MS clinics to compare their services with international quality standards for the timing of key stages in the care pathway. 

Our ePoster (EP1417), TIME MATTERS in MS: developing a globally applicable quality improvement tool, reports how the tool has been successfully trialled in MS centres in Australia, Germany and the UK, and provides details on the next phase of this exciting project – when we will make the tool available for wider use. The ePoster will be displayed on screens throughout the congress and is available to download here.

Interested in using the tool in your clinic? We plan to provide regular updates on the clinical management tool in the MS Brain Health newsletter. Click here to subscribe. 


MS Brain Health exhibition booth (D05)

If you are attending ECTRIMS 2018, please visit the MS Brain Health stand and speak to our team. At the booth, you can also:

  • sign up to become an MS Brain Health champion and receive a USB stick containing our most popular resources
  • share your views on how best to communicate with people with MS, via an online survey
  • find out more about our activities, including the project to develop a clinical management tool (see above)

For those of you who cannot make the congress, you can keep up-to-date with the latest news via Twitter by searching #ECTRIMS2018


New! Full report now available in German

We are delighted to announce that the German translation of Brain Health: time matters in multiple sclerosis is now available on our website. Printed copies of this important resource will be available from the MS Brain Health exhibition booth at the congress.

You can download the report in German and English here


Information day for people with MS

This month, Prof Jeremy Hobart and Prof Gavin Giovannoni presented the recommendations of the policy report, Brain Health: time matters in multiple sclerosis, at an MS Society Education and Information Day for people with MS in Torquay, UK. The event, which was organized by South Devon MS Society Group, highlighted how healthcare professionals and local people with MS can best work together. 

Read more here


You can follow us on Twitter @MSBrainHealth to keep up with the latest news. Thank you for your continuing support!

 

Gavin Giovannoni, MD
Professor of Neurology and Chair of the MS Brain Health Steering Committee

On behalf of the MS Brain Health Steering Committee: Gavin Giovannoni, Peer Baneke, Helmut Butzkueven, Jodi Haarsten, Jeremy Hobart, Gisela Kobelt, Christoph Thalheim, Tony Traboulsee, Tim Vollmer and Tjalf Ziemssen


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