Sharing your stories
Over the summer we have enjoyed hearing how you are continuing to support the MS Brain Health initiative around the world. Here are some exciting updates:
- Supporters in Australia have set up the Australian MS Brain Health Community, aimed at facilitating the local implementation of recommendations from Brain health: time matters in multiple sclerosis.
- A successful MS awareness day took place in Southampton, UK; many copies of our popular guide for people with MS were disseminated to people newly diagnosed with the condition.
- Award-winning UK patient advocate, Trishna Bharadia, was interviewed about the challenges facing people with MS. In the published article, Trishna described the MS Brain Health Initiative as “a remarkable programme that is pushing for a change in MS care”. You can read the full article here.
Have you presented at a local meeting, written an article or organized an MS event to spread the brain health message? If so, please let us know how you are promoting MS Brain Health in your country so that we can share your expertise and experiences to inspire others.
Update on new MS publications
Supporting people with MS in treatment decisions
People with MS face difficult decisions when choosing which disease-modifying therapy is best for them. The authors of two new reviews call for standardized information and additional support for decision-making to be made available.
Could MS be identified earlier?
According to new research, very early indications that MS is developing may be detected up to 5 years before clinical signs and symptoms appear. Increased use of healthcare services before a first ‘relapse’ (demyelinating event) may signal the existence of an MS ‘prodrome’. Being aware of this could help healthcare professionals to identify people at risk of MS early and to introduce timely interventions to protect brain health.
New endorsement for policy report
This month, the Multiple Sclerosis Society of New Zealand became the 44th organization to endorse Brain health: time matters in multiple sclerosis. We take this opportunity to thank all our endorsers and we look forward to engaging with representatives from our endorsing groups during ECTRIMS later this year.
Please follow us on Twitter @MSBrainHealth to keep up with the latest news. Thank you for your continuing support!
Gavin Giovannoni, MD
Professor of Neurology and Chair of the MS Brain Health Steering Committee
On behalf of the MS Brain Health Steering Committee: Gavin Giovannoni, Peer Baneke, Helmut Butzkueven, Jodi Haartsen, Jeremy Hobart, Gisela Kobelt, Christoph Thalheim, Tony Traboulsee, Tim Vollmer and Tjalf Ziemssen