It has been an exciting few weeks for MS Brain Health! Over 8000 neurologists, researchers and people with an interest in MS recently came together at the European Committee for Treatment and Research in Multiple Sclerosis (ECTRIMS) annual congress. Following this, one of the world’s largest events for people with MS, MS Life, was hosted by the MS Society. Thank you to everyone who came to visit the MS Brain Health stands at these events. Read about our meeting highlights below!
Coinciding with ECTRIMS, our report, Brain health: time matters in multiple sclerosis, was published in a special supplement of Multiple Sclerosis and Related Disorders. The review is freely available to read and share, via the link above.
Finally, we are pleased to announce that translations of our short guide for people with MS are now available on our website. Brain health: a guide for people with multiple sclerosis is available to download in French, German, Polish and Spanish.
ECTRIMS 2016 highlights
Engaging presentations from Gavin Giovanonni, Gisela Kobelt and Tjalf Ziemssen prompted open discussion on the MS Brain Health stand about quality standards, cost of illness and treatment optimization in MS.
Quality standards were also the subject of our poster; Jeremy Hobart presented data on variation in the diagnosis and treatment of MS, as well as on neurologists’ views regarding quality standards. The poster is available to view and download free on our website, here.
Almost 70 healthcare professionals completed our survey on improving the quality of MS services. These results will feed into a project we will be piloting in 2017, to encourage and measure implementation of specific recommendations from our policy report. If you missed your chance, the survey will be available via the link below until Monday 17 October.
MS Life 2016 highlights
Leading a brain-healthy lifestyle was one of the key messages of this meeting for people with MS. Top tips for leading a brain-healthy lifestyle were captured on our whiteboard and on Twitter via the #ILoveMyBrain hashtag. We live-tweeted the event, and @MSBrainHealth now has over 1600 followers!
Over 120 people completed our survey for people with MS! We heard that wide variation in the diagnosis and management of people with MS exists in the UK. We would like to hear about your experience, so please participate in our short survey by Monday 17 October.